Treyson had his 9 month well-check on Monday. He's doing fabulous is pretty much everything. I say "pretty much" because the poor guy is TINY! Stats:
Weight: 16 lbs 1 oz (less than 5%)
Height: 26 1/2 in (5%)
Head: 17 3/4 in (50%)
Our doctor felt it necessary to take some blood to do a little research to make sure nothing was causing his lack of size. He did SO WELL having his blood drawn! The nurses were a little hesitant because they couldn't find a good vein but they went for it and and immediately got the blood they needed. Treyson didn't even cry! About half way through he started to fuss, but a couple clicks of my tongue was all he needed to distract himself. Such a good boy! Now, knowing my family.. it's not surprising to see those tiny numbers, but seeing as how he started off in the 75% and has dropped to the 5% we felt it would be best to just make sure everything was ok. We just got the lab results back today, we still don't have a definite answer, but we know the basic cause of his stunted growth. Treyson has Renal Tubular Acidosis (RTA). Basically his kidneys are not functioning quite right, throwing off the PH level in his body. Luckily, his is not too bad at this point, from what we know based off his blood work. We are, at this moment, waiting on a urine sample to take to the doctor so they can test it and see what type of RTA our boy has. We also got our Rx for another 3 week round of meds to get his levels back to normal and at the end of those 3 weeks we'll redo his blood work. It sounds like he'll grow out of it by the time he's 3 but he will have to have his blood tested about every 6 months.
In other, good, news.. the dermatologist has "dismissed" us! Yay! We are only to go back if we need him! We finally feel like we've got a handle on this poor boy's skin. He has been sleeping through the night almost every night for the past week and a half! I am an entirely different person. I forgot how much easier it is to get through the day when you've had more than 4-5 hours of sleep accumulatively. This poor little boy has gone through a lot and now we'll face our new set of challenges and conquer those. The great thing about all of this is that he should grow out of all of it. So by the time he's 5 we had better not have any issues! I sure hope that's the case!
We are so blessed with this little boy who is always so happy despite the havoc his body is causing. Every morning I see this huge smile break out across his whole being. He just lights up! And it stays that way all day. Everyone just feels more peaceful when they see him. We get it all the time, from strangers and close friends and family. They talk about his gentle nature, how mellow he is and how happy he always is. Lately he fights nap time at church so he fusses more and one of our friends told me that was the first time she's ever heard him cry! He's just such a GOOD boy and Cory and I feel so blessed to have the opportunity to have such a close and wonderful relationship with him. I couldn't be any more proud of him than I am right now. I could (would love to) go on and on about how wonderful he is, but I'll just sum it up (for your sake) and just say this: I just love him so much!!!!
1 comment:
Yay for his skin!! I'm glad the RTA is only a temporary thing, he sounds like he has such a good attitude and I can't believe he didn't cry when his blood was being drawn. What a brave angel!
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